Eligibility Criteria
Group 1: Caregivers of children with nephrotic syndrome
1. Parent/guardians must be at least 18 years old
2. Must be able to read and understand English.
3. Are caring for a child aged 2-11 years with a biopsy
diagnosis of Minimal Change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy.
4. Their child must have current swelling or a history of
swelling within the past 3 months.
5. Their child must not be receiving dialysis.
Group 2: People with nephrotic syndrome
1. At least 8 years old
2. Are able to read and understand English.
3. Have a diagnosis of Nephrotic Syndrome or a
specific kidney disease that causes Nephrotic
Syndrome, such as Minimal Change Disease, FSGS,
IgM Nephropathy, or Membranous Nephropathy.
4. Must have current swelling or a experienced
swelling within the past 3 months.
5. Must not be receiving dialysis.